Tina in a cream crochet shore sleeve top in front of the Houses of Parliament.

Tina’s lasting legacy of love

When two of Tina’s children were diagnosed with Batten Disease, Evelina London became their home and refuge. That care inspired her to leave a gift in her Will, carrying their memory forward.

Sensitive content: this article deals with themes of child loss.

Finding strength in care

Tina’s son Jordan was just two years old when he had his first seizure. After two years of hospital visits, he was diagnosed with Infantile Batten Disease – a rare, life-limiting condition. By then, his baby sister Jasmine had also tested positive for the disease.

“When you spend so much time in hospital, it becomes your world. We received the best care from everyone – doctors, dieticians, physiotherapists. It was always a team effort.” recalls Tina, Jordan and Jasmine’s mum.

Jasmine and Jordan

Support that reached beyond the ward

For years, both children were supported by the dedicated Evelina London team. They worked closely with Dr Ruth Williams, the UK’s only Batten Disease specialist and joined her research project.

Outreach nurses visited the family home, and when Tina needed support after Jordan and Jasmine passed away, she was introduced to Molly, a bereavement counsellor.

“After the children passed away, I was put in touch with Molly, a counsellor for bereaved parents. I was so grateful to have the time to talk with her. Things always felt a little bit lifted after our sessions.” Tina recalls.

“The staff were incredible every step of the way. Evelina London will always be part of my life.”

Tina, Jordan and Jasmine’s mum

Tina and B, volunteering at Evelina London Children

Tina (right), volunteering for Evelina London Children's Charity

Keeping memories alive through giving

Jordan passed away at nine years old, and Jasmine at ten. Tina treasures the memories of the care they received, and of her extended Evelina London family.

“You don’t just lose your children, but also the friendships and connections you’ve made at the hospital. Leaving a gift in my Will is a way to keep some of that alive.”, Tina shared.

Honouring Jordan and Jasmine

Today, Tina works for Evelina London Children’s Charity, helping to raise awareness and support for the hospital. For her, it is a way of honouring Jordan and Jasmine, while ensuring other families receive the same extraordinary care.

How you can help

By leaving a gift in your Will, you can help ensure Evelina London is always there for children and families who need it most.

Find out how a gift in your Will can transform the future of care at Evelina London.

Leave a gift in your Will